Tuesday, July 28, 2009
Living With MS
I am a photographer. It’s not just a job; it’s who I am. The moment I gripped a camera and covered my first assignment, my life changed in a profound and positive way. After searching for the majority of my adult life for a career that was meaningful to me, I knew this was the path that God had intended.
Unfortunately in September of 2008, I was diagnosed with Multiple Sclerosis.
My first thought was: “Oh no, what does this mean, thousands of people have MS and function normally. I will follow my doctor’s orders and start treatment immediately.” Albeit, that wasn't my deep deep feelings: I was scared, mad and angry. Other than the death of my grandparents, I have never been so low.
Then the heat of summer arrived. Now, I love summer; I live for summer. But, the heat literally paralyzed my body with exhaustion to the point where I could not take a step or lift my head. This, I wasn’t prepared for. I’ve never let fatigue or illness get in the way of my job. But this year, the heat stopped me dead in my tracks.
I’ve been told it’s unprofessional to share my illness. However, I am part of the community in which I work and live. I want to reach out to others who may feel alone. Part of the wonderful experience of my job as a photographer is sharing people’s grief and joy. So I am sharing my grief and joy also.
Recently, I had an episode that placed me immobile. From the severe weakness, I literally collapsed.
Upon high recommendation, I am receiving several consecutive days of intravenious steroid treatment. I am being optimisic that this treatment will restore my life to being active again.
If anyone would like to share information that may be helpful, I’m welcoming it. I joined a support group that will resume in the Fall.
I am going to fight this with everything I have.
It may slow me down but it WILL NOT ROB ME OF MY PASSION !
I'll see you on Friday.